Thursday, October 11, 2012

My Baby Has Down Syndrome

After a day of giving birth to Mirage I asked if I can go see him in the nursery and so I did.I had pictures taken while he was in the incubator but I was not able to download and save them. I did not notice anything different with P I totally forgot about the impression in the ultrasound. That same day the pediatrician came to my room.First he introduced himself and told us there is a reason why he came to visit..to look at us(parents)to know if Mirage features came from us.And then he broke the news..its possible that Mirage has Down Syndrome.I started to cry.He was assuring us that having child with DS is easier now just make sure he will have therapies he needed..and that his mother had an assistant when she was working who has DS. He told us P had accompanying condition,hypospadias. What is hypospadias? Hypospadias is a male birth defect in which the opening of the tube that carries urine from the body (urethra) develops abnormally, usually on the underside of the penis. The opening can occur anywhere from just below the end of the penis to the scrotum. Hypospadias is a rare disorder, affecting only about 1 out of 250 live male births.1 A form of hypospadias in which the genitals are abnormally positioned can also develop in females. How is it treated? Hypospadias is sometimes treated with surgery to correct the placement of the urethral opening, usually during the first year of life. There are several different types of surgery, which may include repositioning of the urethra, correcting the placement of the urethral opening in the head of the penis, and reconstructing the skin of the area around the urethral opening. Because the foreskin may be needed for surgical repair, a baby with hypospadias should not be circumcised. Complications, which are more likely to occur in older children and adults, can include bleeding, infection, narrowing of the urethra (stricture), and curvature of the penis. Most males are able to urinate successfully from a standing position after surgical treatment of this condition.

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